I have an incurable chronic illness. It's autoimmune in nature, which means my own body is attacking itself because it does not recognize me as "self". My predicament does not surprise me as my mother's illness was similar in nature, and I inevitably inherited it from her. So, in order to deal with this issue, I consume plenty of anti-inflammatory medications. As with many sufferers of autoimmune illnesses, I seem fine outwardly, but inwardly a terrible battle rages.
I still get up and go to work and return to keep house. I also have a few "extra curricular activities", such as functioning as the state president of my professional society, secretary of my local RWA chapter, and writing my own book. However, the reality is that pain is a constant in my life and everyday it chooses how much wrath it will leash upon me. Some days are more merciful than others, but I am almost always exhausted by the time I return home from work. With the day only half-over, I still face dinner and the cleanup, after which precious little time is left for personal interests.
However, there are a few things my disorder has NOT taken from me, such as my drive and determination. Writing my book is second-highest on the list, the first is to take back my health.
Working at the Urinalysis bench |
But for now, I am forced to pace myself and take many rest breaks because my immunity is still more of a whack-job than a Lady Gaga presidency would prove to be! I fully expect that for the time being I will take two steps forward and one back. In fact, I have become the queen of beginning projects that never seem to be completed. But at least there is forward motion, and that still counts as progress.
So here's my question, when you are in the darkest pits of despair and/or impossible deadlines are racing toward you at light speed, what is your coping mechanism? To put it another way, how do you get past all the perpetual roadblocks and just "git'er done"?
For an eye-opening insight into the daily life of a person with an autoimmune disorder, please read "The Spoon Theory" by Christine Miserandino at:
http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory-written-by-christine-miserandino/
I just wanted to say, what a beautiful post. I have fibromyalgia, so I hear the days of pain. For me, I keep my goals in mind, and I surround myself with the most loving, supportive people I can. Hang in there, and thank you for this post.
ReplyDeleteOh no-so sorry to hear about that. Fibromyalgia can be so very painful-my heart goes out to you! You have a fabulous coping strategy Mary in addition to a great attitude. You're welcome-and I'll keep hanging on as long as I can! :)
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